Success

Success amidst adversities.


Suniti was around 14 years old when she came to with an unusual request. She wanted me to help her seek admission to the Science stream of her school. She had been a 'better than average' performer at her school who would secure a first division. Her rank in her small town school was reasonably good. However, the school authorities were skeptical about her future in the Science stream. How would she complete her course, and how would she go through the practical classes? These were some of the concerns they had in mind.


Suniti's academic performance was not a real measure of her inherent potential. She had a history of cataract surgery in both eyes while she was a very young child - three or four year old. However the surgery was not contemplated early enough and the crucial years when visual functions develop had passed away. Following the surgery she needed rehabilitation with glasses, but this aspect was not looked into timely.


The surgeries therefore did not turn out to be very useful. She had to manage with a 3/60 vision - which means she could barely see objects at a distance of three meters while a normal person would be able to read the same letters from a distance of 60 meters.

Her eyes exhibited continuous sideways movement technically called "nystagmus". This meant that eyes had a wondering gaze.

Suniti's problem is an example of a condition called "amblyopia" - a lazy eye that did not realize its true potential due to "lack of proper opportunities."

The eyes had not attained their visual potential. How and why should that translate to lack of opportunities for her! I thought.

"Is it true, I can not pursue a course in Science?” She asked me.

"My view is, you can. It only depends on whether you have an inclination, aptitude and temperament to apply Science to your life. It depends on whether you have a rational approach to life". I said.

"There are people who have little education but go on to become great innovators. There are others who carry a "tag" of Science graduate, and have nothing Scientific about them." I told her sister who accompanied her. Science is not the domain only for those who can see. I once read about a NASA space scientist who was blind but had a galaxy discovered!

"So what can we do? The Principal would probably pay heed to any comment you might write!" The sister pleaded.

I gave them a detailed letter addressed to the Principal citing what were essentially my views on the right to education and the status of education in India.

Few years elapsed. I did not know what happened to the girl or if she actually pursued any kind of education thereafter.

It was now that the girl came back again! This time with her younger sister. She wanted to share a positive development in her life: She was about to graduate as a physiotherapist in few months and had had her training at a leading hospital in Bombay.

It has been one year since that last meeting. I have been told she has opted for a placement in the metropolitan itself. Her parents are happy for her achievements.

Until recently there were very few opportunities for visually challenged persons in India: While we were residents at Hamidia Hospital, Bhopal affiliated to the Gandhi Medical College, one Mr. Thakur used to run a telephone booth. Few years later the booth was dismantled, I do not know where did the guy shift or what did he do to earn a living thereafter; in any case a telephone booth has ceased to be a career option for such people as almost everyone has a mobile these days. Balakdas who had unsuccessful corneal transplantation was luckier. He worked as a ward attendant at the same eye department where he had his surgeries.

Coming back to Suniti, Someone whose mother worried day and night about what would happen to her after she passes away was now helping sighted people conquer their pain through her physiotherapy!

All this had been possible only because at a crucial juncture of her life a kind school Principal relented and allowed her to pick up a subject of her choice. The system which is otherwise known for its absurd liking to "go by the rule book" had only few years ago nearly jeopardized the career of a medical graduate at the All India Institute of Medical Sciences, New Delhi but for the intervention of the National Human Rights Commission. This chap had turned blind during his medical graduation due to a disease called "Eales' disease" and the Medical Council of India had been adamant to truncate his career on the grounds of his inability to take the clinical part of his examination. Thanks to the directions of the NHRC, he would have a chance to pursue a medical specialty such as Psychiatry.

The girl and the medical student are on their way to professional rehabilitation. I am sure they will make better professionals than others with normal sight.

If you come across someone whose right to education is being challenged due to physical or visual challenges, make an effort to propagate a positive message.

Thanks a lot.

Goodbye!

Feedback

Dear readers,

Thanks for participating in the pool as to how boring or otherwise (inspiring) this blog is. I wish I could get more direct feedbacks as to what you would like to have in the blog: More inspiring stories, financial management to save for an illness, simple anecdotes, more complex medical scenario or any thing else? ... Simple tips?

I intend to bring out the story of a young girl, legally blind but qualifying herself to be a physiotherapist in the next post.

Do post your comments.

Thanks and good bye.

Man versus virus: Story of a brave AIDS patient

To

Those close ones who taught me medicine in a way my medical text books and lectures didn’t.

Dear little one,

What worries us most is the manner we would have to answer questions that have probably already begun to baffle your young mind.

Howsoever young we might be, perhaps all of us have “a little Buddha” inside us eager to find out the ways of nature. I am not sure, how we will answer all your questions of this kind in future, but let me today tell you a story of a middle aged lady who literally allowed her body to be used as a clinical learning tool for medics:

The brave Uzma

This lady we are talking of, was wife of a deceased diplomat from some middle-east country. The diplomat, once posted in India, had died of some opportunistic infection with AIDS, and had passed on his infection to his wife.
Uzma as I would prefer to call her was the most amazing AIDS patient I have seen till date. She had an ocular infection with a virus called ‘cytomegalovirus’ seen in an advanced stage of AIDS.
We were around three or four fellows and two students with our consultant. One by one we took turn to peep into her eyes. She had no vision and thus had no clue as to how many prospective examiners were there to see her.
Each examiner would take 5-8 minutes for a proper view. Soon everyone else had finished. I was the one who had to complete her medical records, thus I was required to spend maximum time with her.
Unaware I was the next one in the queue, she assumed a sitting posture on her couch.
It was now that I requested her to lie down again for a while.
“Madam, would you please lie down again for a while…”, I said.
“Oh, so one more is there”, she said and gently lied down again.
Throughout next ten minutes or fifteen, there was no protest, no anxiety or impatience. It was like I was examining a plaster of Paris model. Her serenity was extra ordinary.
She was lively and yet quiet and composed.
I realized that despite her advanced illness and visual handicap, she was still a very confidant lady – someone in total control of her emotions. After her examination, she thanked me and got up from the couch.
While so many of us tend to “absolutize” our minor illnesses as trivial as recurrent cold, here was a lady who had a clear understanding of her problem but refused to be “written off” by life that was all set to defeat her.
Let us salute the lady who has since deceased. I owe my practical education on AIDS to patients such as these.
More stories next time!
Until then,
Goodbye!